Linking pre- and post-adoption records for research in anonymised form in a data safe haven
The study examined the legal and practical issues involved in linking adoptees' pre- and post-adoption records for longitudinal research, including the effect of NHS-number changes and public views about anonymised linkage.
Limitations: This study concerns research infrastructure rather than adoptee outcomes.
- Research type
- Legal analysis; public engagement
- Source reviewed
- Full text
- Peer reviewed
- Yes
- Age group
- All ages
Study context and review
Age group as recorded: All ages
Adoption context: Adoption records and health data
Programme: Not recorded
Institutional context: No relationship identified in the material checked
No adoption-sector organisational relationship identified in the bibliographic material screened. This is not confirmation of institutional independence; affiliations, funding and conflicts were not comprehensively audited.
Bibliographic screening. Bibliographic relationships are not a bias or safety rating.
Topics: data linkage, England and Wales, health records, records, research gaps, UK research
Review scope: Source checked: Full text. This does not imply full-text or independent human verification.
Country as recorded: England and Wales
- Funding
- Not yet checked for this entry
- Commissioner
- Not yet checked for this entry
- Funder role
- Not yet checked for this entry
- Declared conflicts
- Not yet checked for this entry
- Recruitment
- Not yet checked for this entry
- Adoptee involvement
- Not yet checked for this entry
Entry: study_26716ebb57445979